A Long, Lonely Journey: Loving a Spouse Who is Living with Dementia

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Tuesday, December 29, 2020

All change . . . All change . . .

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  And just like that, Doug has been moved from the hospital unit back to his long term care home, and we are only a 15 minutes drive away fr...
Saturday, December 5, 2020

C is for Christmas, and Covid, and Caregiving

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  (Stamp from Ali Edwards' December 2020 'Stories by the Month' kit.) Doug loves Christmas. I think he has always loved Christma...
Monday, November 23, 2020

A is for Asking, and also for Accepting

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I don’t have a clue. How do I do this? How do I keep doing this? Caregiving through Covid: the challenges of 2020 have presented a steep lea...
Saturday, November 7, 2020

On Admitting I Was Wrong

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  (photo: Piper & Kitty) The  first time I started attending an educational series about Dementia, I quit. There was too much informati...
Saturday, October 31, 2020

Three Things

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  (photo: a recent sunrise above my neighbours' rooftops) I can’t remember when my sister, my Mum, and I started this (other than ‘since...
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Friday, October 16, 2020

Random Bits of Paper

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   (photo: fridge door, October 16, 2020) The church across the street is running ‘Operation Warmth’ this winter - collecting gently used wi...
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Saturday, October 3, 2020

“Three Years Ago This Week”

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(photograph: Harpers Ferry, autumn 2017) I make photobooks with a service which occasionally sends me bittersweet email reminders of past al...
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About Me

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Louise
My husband and I recited our wedding vows in August 2012, agreeing to love and cherish each other in sickness and in health. We didn't know there was sickness already. We never imagined that early onset dementia would define our marriage. In May 2013 he was formally diagnosed with Mild Cognitive Impairment. “It's NOT mild!!” I wrote to my sister . . . ah, had I only known how mild it was. I could list all things my intelligent, hard-working, capable, adventurous husband can no longer do - but to what purpose? It would be easy to feel sorry for us - but that won't change what is. I am a witness to his life, I treasure his memories, and I love him. His is not my story to tell, and I can’t speak to the reality of living with dementia except in my role as wife and caregiver. I've made mistakes along the way - but we've had lots of good moments too.
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